lymphedema education and research foundation
lymphedema education and research foundation Since its establishment in 1998, this organization has been dedicated to advancing lymphatic disease understanding and improving patient care. With roots in New York City, it has grown to have a global impact, bridging the gap between scientific discoveries and practical clinical applications.
The organization focuses on three core pillars: funding innovative research, providing professional training, and advocating for patients. It pioneered the creation of the first patient registry and tissue bank, setting a standard for lymphatic research worldwide. lymphedema education and research foundation
Led by a board-certified team, including Dr. Emily Iker and Jonathan Ross, the group operates as a 501(c)(3) nonprofit. Its financial transparency is verified by GuideStar, ensuring trust and accountability. Over 25 years, it has built a comprehensive resource directory, offering valuable information for both patients and clinicians.
With a clear mission to enhance access to knowledge and care, this organization continues to make strides in its field. Its commitment to advocacy and innovation remains unwavering, shaping a brighter future for those affected by lymphatic conditions.
About the Lymphedema Education and Research Foundation
In 1998, a groundbreaking initiative was launched to combat lymphatic disorders. This effort has since grown into an internationally recognized organization focused on improving lives through innovative approaches.
lymphedema education and research foundation The group takes a multi-disciplinary approach, combining research funding with public awareness campaigns. This dual focus ensures that scientific discoveries translate into practical solutions for patients.
lymphedema education and research foundation Governance is led by a diverse board of medical experts and community advocates, including Elizabeth Basaca, Emily Iker, and Jonathan Ross. Rigorous practices, such as mandatory ethics training and triennial self-assessments, ensure accountability and transparency.
Financial integrity is a priority, with a verified partnership through GuideStar. The organization invests $2.3M annually in lymphatic research, supporting over 15 institutions nationwide.
- A collaborative network of 300+ healthcare providers enhances patient care and resource sharing.
- The strategic plan through 2026 emphasizes early detection protocols to improve outcomes.
- Active participation in NIH-led task forces ensures alignment with global efforts.
lymphedema education and research foundation With a commitment to governance and innovation, this organization continues to lead the fight against lymphatic conditions, shaping a brighter future for all.
Directory of Lymphedema Services
Navigating lymphatic disorders requires comprehensive resources and support. This directory provides patients and caregivers with essential tools to manage these conditions effectively. From advocacy to research funding, it ensures access to the best care options available.
Patient Support and Advocacy
Patients with lymphatic diseases benefit from a robust network of services. A national referral system connects individuals with specialists, while insurance navigation support simplifies the process. Free compression garment exchanges serve over 500 people annually, improving quality of life.
Bilingual educational materials cover 12 lymphatic disorders, making information accessible to diverse communities. Quarterly virtual support groups, led by certified therapists, offer a safe space for sharing experiences and strategies.
Research and Funding Opportunities
Advancing knowledge about lymphatic diseases is a priority. The NIH Notice of Special Interest highlights R01 grants with a September 2026 deadline. These grants support innovative studies aimed at improving treatment options.
The patient registry and tissue bank play a vital role in research. They provide valuable data and samples, enabling scientists to explore new therapies. Funding opportunities are available for institutions and researchers dedicated to this field.
| Program | Description | Impact |
|---|---|---|
| Specialist Referral Network | Connects patients with certified specialists. | Improves access to care. |
| Compression Garment Exchange | Provides free garments to those in need. | Serves 500+ annually. |
| Bilingual Education Materials | Covers 12 lymphatic disorders. | Enhances understanding. |
| Virtual Support Groups | Moderated by certified therapists. | Offers emotional support. |
Educational Resources and Programs
Access to reliable resources can transform the way we understand lymphatic conditions. Our programs are designed to empower patients, caregivers, and professionals with the tools they need to make informed decisions.
Lymphatic Education Research Network
The Lymphatic Education Research Network (LERN) is a cornerstone of our efforts. It offers continuing medical education courses with AMA PRA Category 1 Credits™. These courses are tailored to healthcare providers seeking to deepen their knowledge.
Our digital library houses over 1,200 peer-reviewed studies on lymphatic conditions. This resource is invaluable for researchers and clinicians alike. Monthly webinars feature insights from Nobel laureates and NIH directors, keeping participants at the forefront of advancements.
LERN also provides a certification program for oncology rehabilitation specialists. This initiative ensures that professionals are equipped to deliver the highest standard of care.
Workshops and Training Programs
Hands-on workshops are a key component of our educational offerings. These sessions focus on practical skills and the latest treatment techniques. Participants gain actionable insights that can be applied immediately in their practice.
Upcoming events include the 30th ISL World Congress of Lymphology in October 2025. This global gathering will bring together experts to share groundbreaking research and strategies.
| Program | Description | Impact |
|---|---|---|
| Continuing Medical Education | Courses with AMA PRA Category 1 Credits™. | Enhances professional expertise. |
| Digital Library | 1,200+ peer-reviewed studies. | Supports evidence-based practice. |
| Monthly Webinars | Featuring Nobel laureates and NIH directors. | Keeps professionals updated. |
| Certification Program | For oncology rehabilitation specialists. | Ensures high-quality care. |
Upcoming Events and How to Get Involved
Join us in shaping the future of lymphatic care through upcoming events and meaningful opportunities. From symposiums to global initiatives, there are numerous ways to engage and make a difference.
Lymphatic Forum 2025 and Other Key Events
Mark your calendars for the Lymphatic Forum 2025, taking place June 12-14 in New York City. This three-day symposium will feature live surgery demonstrations, expert panels, and cutting-edge presentations on lymphatic research. It’s a must-attend event for professionals and advocates alike.
Other notable events include the Global LymphWalk 2025-2026 series, spanning 12 major cities worldwide. This initiative raises awareness and funds for innovative research aimed at finding cures lymphatic conditions.
Don’t miss the #BLS2025 Conference, which will unveil groundbreaking updates in biomarker research. Additionally, the World Symposium on Lymphedema Surgery in March 2026 will bring together leading surgeons to share advanced techniques and plan for the future.
Volunteer and Donation Opportunities
Your support can make a lasting impact. Volunteer at events like the Lymphatic Forum or join the Global LymphWalk to help raise awareness. Every effort counts in advancing access to care and resources.
Donations are another powerful way to contribute. Funds support critical research and provide essential resources for patients. To explore options or get involved, contact our team today.
Take the Next Step in Lymphedema Education and Research
Advancing lymphatic care requires collective effort and innovative solutions. Join our organization in making a difference by exploring actionable opportunities.
Register for the 2025 Lymphatic Forum to secure early-bird rates. Download our free management toolkit for practical tips. Stay updated with monthly digests featuring the latest news and NIH updates. lymphedema education and research foundation
For approved studies, explore procedures to request tissue samples. Connect with regional chapters across 15 US states to find local support. Review our 2024 Annual Report detailing $1.8M in grants dedicated to finding cures.
Follow our social media channels for real-time alerts on funding opportunities. Don’t miss the pre-sessions for the 2026 Gordon Research Conference. Together, we can improve access to care and drive progress in education and research.